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Buenas tardes a todos, perdón, sigo con mi garganta mal e non se se oira moito, pero a mí me aúda algo.

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Continuamos con Carlota, nas defensas dos magníficos trabajos de investigación dentro do nosso proxecto de bachillerato de investigación.

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Hoy Carlota habla sobre unha enfermedade de pi de hermónisis mullosa, vou proceder a dar un pouco as tautas para que llegase que todo o mundo as conoce,

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porque hai persoas que han estado en tribunales nos cursos anteriores.

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En primer lugar, que non se me olvide dar las buenas tardes a todos e agradecer que estéis aquí a estas horas.

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En primer lugar, a candidata defende o seu trabalho, ten 20 minutos, seguidamente o director do trabalho pronuncia unhas palavras,

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a continuación o tribunal procede ao turno de perguntas e as suas aportaciones, seguidamente todos abandonamos a sala para que o tribunal delibere

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e posteriormente volvemos cando esten listos e dan o seu veredicto.

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De acordo?

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Pois, Carlota.

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Moitas buenas tardes, me llamo Carlota e vou falar sobre o trabajo de investigación que é este aqui.

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Este é un pouco o que vou seguir, dar unha introducción, vou saber o tema e por último unhas conclusións.

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Pois, o corpo humano se compone de unhas células que teñen unhas genes e estas sintetizan unhas proteínas que determinan quiénes somos.

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Estes genes se poden traduzir de pais a filhos e durante este proceso pode haver unha operación que produzcan enfermedades genéticas.

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Há de tres tipos, están os que teñen tratamentos, os que teñen cura e os que tenen cura.

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En el caso de la epidermodición insuliosa hablamos de unha enfermedad que non teñen cura e que además se considera unha enfermedad rara,

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ya que hai 22 casos como este.

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Esta é a capa de la piel, esta é a epidermis e a dermis.

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Este roxo é unha proteína que se colaja no siente e se encarga de juntar as dois capas.

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Cando hai unha ausencia desta proteína se producen ampollas e erosiónes que é o que caracteriza esta enfermedad.

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Estas ampollas se producen na piel e nas mincosas e se considera unha enfermedad frágil, débil, sensible e vulnerável,

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ya que con o máis mínimo arroce ou con o calor ou con un uso de vendaje erróneo poden causar estas ampollas.

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Por iso tamén se compara con a piel de maricóxido.

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Debra é unha organización que teñemos aquí en España, en outras partes do mundo,

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e o que teñen como principal objetivo é dar visibilidade desta enfermedad e apoio ás familias con ele.

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En España teñemos mil persoas máis ou menos con esta enfermedad,

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e 254 afectadas están registradas en el DNDAP.

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Destas 254 persoas hai tres tipos que destacan sobre os demais.

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O 92% das persoas sufre unha EBE simple, o 5% unha EBE cultural e o 1% unha EBE estrófica.

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Explicaré un pouco cada unha.

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A primeira é a EBE simple, é a máis frecuente de todas e se dá no 92% dos casos.

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E a ruptura neste tipo de EBE se produce na unión genocidémica, que é o estado avanzado.

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Se hereda de forma autosómica dominante, e isto quer dizer que se unha dos dois padres sofre a enfermedad,

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o 50% dos seus descendentes tamén a sofrerá, e se desarrolla desde o aumento ou o período neonatal.

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Hai algunos casos en os que tamén poden sofrer con enfermedad adulta.

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O que se forma con este tipo de EBE son ampollas e erosiones nas palmas e nos pés.

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Tambén se desarrolla un engrosamento da piel, que se conoce tamén como keratosis.

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É un tipo que non solle deixar cicatrices, e hai casos extremos nos que sí que pode llegar a deixar.

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E tamén se producen lesiónes a causa de pragmatismos cutáneos, o distrofia, que é a perdida da masa muscular do corpo,

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ou cicatrices atróficas, distrofia, anemia, etc.

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Esta é a epidermis e se formaría aquí a clótura.

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Logo, tenemos a EBE puntural.

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A clótura aquí se produce entre a lámina lúcida e a lámina densa,

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e hai unha característica que destaca moito, que é a hipocrasia de enesmalte.

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O que quer dizer isto?

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Pois que hai unha metabización deficiente nos dientes dos pacientes que os enfrían,

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aunque iso só vai ser o 1% dos pacientes.

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Tambén se dice de forma unha reflexión carreguesiva,

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e o inconveniente que tiene este tipo de EBE é que hasta o 87% dos pacientes moren.

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Entre os subtipos deste EBE puntural,

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está a máis grave, que é a EBE cutágrada generalizada,

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que se desarrolla desde o nacimiento,

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e presenta un texido de agravación,

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que é un texido rúcido que se forma en heridas abiertas de alimentación.

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Tambén as manifestacións extracutáneas que se presentan

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poden estar en ojos, genitales, boca, etc.

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E o riesgo de mortalidade deste tipo é até aos 2 anos.

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Depois temos a máis comun e todas, que é a EBE cutágrada generalizada intermedia,

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tamén é desde o nacimiento,

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e presenta agorias picanteces e enes ausentes,

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e en algunos casos tamén alopecia.

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E o riesgo de mortalidade aquí é mínimo.

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E se formaría a rotura entre estas dos pacientes.

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Depois a EBE distrófica,

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e se forma a rotura na capa interna da piel, que é a dermis,

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e se daña en 46,5% dos casos.

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Dependendo das estaciónes da proteína,

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podemos saber que nivel de gravedade teña o paciente.

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As manifestacións máis generales que podemos ver

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son ampollas, anemia, problemas de hemocicio,

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retraso do enriquecimiento,

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e tamén poden desenvolver un déficit en a infestación.

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Igual que se ven tamén heridas e costas.

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Hay dois tipos de EBE.

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A abundante, que é, como já hemos dito antes,

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de un dos pais, el 90% tamén de ena enfermedade,

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e na recesiva, os dois pais teñen defición mutada,

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pero, como este é de forma recesiva,

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o 25% da descendencia procederá nun tipo de inconveniencia,

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o 50% será igual que os pais,

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non apresenta ena enfermedade,

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pero sí que teñen defición mutada,

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e o 25% sí que exigirá ena enfermedade.

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Entón, dos síntomas generales que teñen na EBE,

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destacamos o 5,

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a fragilidade da pele, como já vimos,

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que se compara con unha mariposa,

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a disfagia, que é o problema para tragar,

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o dolor da pele causado por as costas e erosiónes que se forman,

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e problemas dentales, como pode ser a formación de caries,

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ou infecciones dentales.

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¿Que complicacións teñen estes síntomas?

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Bueno, pues, a máis importante dúa é a máis noticia,

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que se pode provocar por tres factores.

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As úlceras bucales, que son como llamas que se forman na boca,

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e isto dificulta a hora de comer.

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Logo temos a anquiloglosia,

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que é cando se forma a mucosa lingual,

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e a mucosa do fondo da boca,

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que se pegan,

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e vai dificultar a hora de cagar,

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de falar,

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e de ingerir a língua.

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E tamén temos as afectaciones dentales,

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como já he dicho, por a formación de caries.

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Logo, tamén, outra das complicacións é a evacuación,

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xa que se poden formar ampollas na zona anal,

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e dificultar a hora de evacuar.

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E outra das complicacións máis impactantes é a morte dos bebés.

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O examen testístico se realiza

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basándose en aspectos clínicos,

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estopatológicos,

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biopatológicos e genéticos.

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E a exploración do paciente deve seguir o seguinte.

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O primeiro é unha biopsia de pele,

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en a que se extrae un trozo de pele infectada,

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e o examinamos para saber se a proteína funciona correctamente ou não.

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Logo, tamén hay análisis genéticos,

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para confirmar o diagnóstico,

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que requieren unha amostra de sangue.

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E por último, tenemos análisis renatais,

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en los que se requieren un estudial clínico.

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Isto é unha amostra de sangue para saber se o gen está mutado ou não.

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Aquí sabemos que o gen está sano,

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e que a proteína funciona correctamente,

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pero aí está mutado,

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e poden haver soluções,

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que a proteína non funcione,

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ou que directamente este auxílio.

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Para o tratamento,

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se for un caso de utilizar tratamentos sintomáticos e variativos,

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que tiñen tres objetivos.

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La alimentación de la formación de ampollas,

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evitar sobreinfecciones,

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e prevenir posibles complicaciones.

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Para iso,

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al tratarse de un tratamento moi frágil,

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porque cualquier mal uso de materiales,

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como os que temos aquí,

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poden formar,

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ampollas.

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Então,

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se usan razas estériles inclinadas na seña,

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masas antibacterianas, etc.

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Incluso,

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os médicos poden chegar a recetar medicamentos.

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Ademais disso,

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tamén se poden incluir

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temitas quirúrgicas,

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como poden ser o estresamento do esófago,

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a sonda de alimentación,

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ou o injerto de pele,

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que teñen que ser utilizadas por un médico.

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E esa imagen de aí,

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corresponde a sonda de alimentación

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en que os alimentos

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irán directamente ao estómago

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por un médico.

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O impacto psicológico

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que esta enfermedad

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pode chegar a surgir

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en famílias,

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o divido en dois,

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ya que tanto os pais como os pacientes

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sofren a nivel psicológico.

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En cuanto aos pais,

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o que solen sentir,

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é o impacto psicológico.

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O impacto psicológico

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O que solen sentir

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son sentimientos de culpa e de rabia,

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ya que,

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ao ser unha enfermedad genética,

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poden pensar que é culpa súa

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que o niño haya sido así,

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e les dá rabia

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non poder facer nada

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para curarle

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e para que

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o niño estés sano.

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E en cuanto aos sentimentos dos pacientes,

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como é unha enfermedad

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que surge desde

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os primeiros anos de vida,

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non entenden

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por que les tocou

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pasarse por esta enfermedad,

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como se forma,

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e diferentes aos demás,

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entón,

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experimentan sentimentos de

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frustración, incertidumbre

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e incomprensión.

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Bé,

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das últimas noticias

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que encontrado,

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a primeira é de un niño

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que regenerou

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o 80% de súa pele

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tras un tratamento

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con células

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máis transgénicas.

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Este niño,

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já tenía

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feridas

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no 60% de sú corpo

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e

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ingresaron

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a un hospital

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de Alemanía.

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E,

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como recurso,

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utilizaron este tratamento

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e aquí non os

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poden recomendar

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por que

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poden

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caer

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moitos efectos

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sustentados.

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Logo,

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o segundo exemplo

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que tenemos

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é unha terapia

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genica

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que se utilizou

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con el virus del herpes,

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en el que se

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inyectaron en el propio virus

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copias sanas

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de colágeno 7

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e

232
00:12:52,000 --> 00:12:53,000
conseguiu

233
00:12:53,000 --> 00:12:54,000
corregir

234
00:12:54,000 --> 00:12:55,000
a enfermedad.

235
00:12:56,000 --> 00:12:57,000
Por outro lado,

236
00:12:57,000 --> 00:12:58,000
Carla e Noa

237
00:12:58,000 --> 00:12:59,000
son

238
00:12:59,000 --> 00:13:00,000
dous niñas

239
00:13:00,000 --> 00:13:01,000
que tiñen

240
00:13:01,000 --> 00:13:02,000
epidemólise

241
00:13:02,000 --> 00:13:03,000
irguíosa tamén.

242
00:13:03,000 --> 00:13:04,000
Son aquí de Madrid

243
00:13:04,000 --> 00:13:05,000
e

244
00:13:05,000 --> 00:13:06,000
o problema que tuvieron

245
00:13:06,000 --> 00:13:07,000
é que os pares

246
00:13:07,000 --> 00:13:08,000
pedieron aúda

247
00:13:08,000 --> 00:13:09,000
ao equipo sanitario

248
00:13:09,000 --> 00:13:10,000
pero

249
00:13:10,000 --> 00:13:11,000
a unha de Madrid

250
00:13:11,000 --> 00:13:12,000
o rechazou

251
00:13:12,000 --> 00:13:13,000
e consideraron

252
00:13:13,000 --> 00:13:14,000
que

253
00:13:14,000 --> 00:13:15,000
é unha tarea

254
00:13:15,000 --> 00:13:16,000
que os pares

255
00:13:16,000 --> 00:13:17,000
poden clarificar perfectamente

256
00:13:17,000 --> 00:13:18,000
que é

257
00:13:18,000 --> 00:13:19,000
a mutación de feridas

258
00:13:19,000 --> 00:13:20,000
e etc.

259
00:13:21,000 --> 00:13:22,000
E por último

260
00:13:22,000 --> 00:13:23,000
quería hablar de

261
00:13:23,000 --> 00:13:24,000
Namuray.

262
00:13:24,000 --> 00:13:25,000
É unha niña

263
00:13:25,000 --> 00:13:26,000
con epidemólise

264
00:13:26,000 --> 00:13:27,000
distrófica

265
00:13:27,000 --> 00:13:28,000
que como podéis ver

266
00:13:28,000 --> 00:13:29,000
presenta

267
00:13:29,000 --> 00:13:30,000
feridas

268
00:13:30,000 --> 00:13:31,000
e costas

269
00:13:31,000 --> 00:13:32,000
no rosto

270
00:13:32,000 --> 00:13:33,000
e na cara

271
00:13:33,000 --> 00:13:34,000
e además

272
00:13:34,000 --> 00:13:35,000
non se ve aquí

273
00:13:35,000 --> 00:13:36,000
pero

274
00:13:36,000 --> 00:13:37,000
tiñe tamén

275
00:13:37,000 --> 00:13:38,000
retraso

276
00:13:38,000 --> 00:13:39,000
no crecimento

277
00:13:39,000 --> 00:13:40,000
por a altura

278
00:13:40,000 --> 00:13:41,000
comparado

279
00:13:41,000 --> 00:13:42,000
con

280
00:13:42,000 --> 00:13:43,000
xente de xa mesma edad

281
00:13:43,000 --> 00:13:44,000
tiñe

282
00:13:44,000 --> 00:13:45,000
9 años

283
00:13:45,000 --> 00:13:46,000
e

284
00:13:46,000 --> 00:13:47,000
tamén

285
00:13:47,000 --> 00:13:48,000
retraso no crecimento

286
00:13:48,000 --> 00:13:49,000
e

287
00:13:49,000 --> 00:13:50,000
desarrollo de dedos

288
00:13:50,000 --> 00:13:51,000
e

289
00:13:51,000 --> 00:13:52,000
de las manos

290
00:13:52,000 --> 00:13:53,000
e os pés.

291
00:13:53,000 --> 00:13:54,000
Lo que me llamou

292
00:13:54,000 --> 00:13:55,000
este foi

293
00:13:55,000 --> 00:13:56,000
con esta enfermedad

294
00:13:56,000 --> 00:13:57,000
e me llamou a atención

295
00:13:57,000 --> 00:13:58,000
moito

296
00:13:58,000 --> 00:13:59,000
que nun documental

297
00:13:59,000 --> 00:14:00,000
pois

298
00:14:00,000 --> 00:14:01,000
sentía

299
00:14:01,000 --> 00:14:02,000
esos sentimientos

300
00:14:02,000 --> 00:14:03,000
de frustración

301
00:14:03,000 --> 00:14:04,000
de incertidumbre

302
00:14:04,000 --> 00:14:05,000
e le pregunto a súa madre

303
00:14:05,000 --> 00:14:06,000
que por que

304
00:14:06,000 --> 00:14:07,000
le tocou a ella

305
00:14:07,000 --> 00:14:08,000
vivir con esta enfermedad

306
00:14:08,000 --> 00:14:09,000
súa madre

307
00:14:09,000 --> 00:14:10,000
sempre le responde

308
00:14:10,000 --> 00:14:11,000
que

309
00:14:11,000 --> 00:14:12,000
desgraciadamente

310
00:14:12,000 --> 00:14:13,000
necesitaba

311
00:14:13,000 --> 00:14:14,000
la epidemólise

312
00:14:14,000 --> 00:14:15,000
distrófica

313
00:14:15,000 --> 00:14:16,000
para cambiar

314
00:14:16,000 --> 00:14:17,000
o momento.

315
00:14:17,000 --> 00:14:18,000
E por último

316
00:14:18,000 --> 00:14:19,000
pois las conclusiones

317
00:14:19,000 --> 00:14:20,000
que he sacado

318
00:14:20,000 --> 00:14:21,000
de todo isto

319
00:14:21,000 --> 00:14:22,000
está máis importante

320
00:14:22,000 --> 00:14:23,000
darles unida

321
00:14:23,000 --> 00:14:24,000
a la enfermedad

322
00:14:24,000 --> 00:14:25,000
e

323
00:14:25,000 --> 00:14:26,000
hai moitas persoas

324
00:14:26,000 --> 00:14:27,000
que probablemente

325
00:14:27,000 --> 00:14:28,000
non ten el conocimiento

326
00:14:28,000 --> 00:14:29,000
suficiente

327
00:14:29,000 --> 00:14:30,000
para poder

328
00:14:30,000 --> 00:14:31,000
tratar con elas

329
00:14:31,000 --> 00:14:32,000
que é a segunda conclusión

330
00:14:32,000 --> 00:14:33,000
que he sacado

331
00:14:33,000 --> 00:14:34,000
hai que saber

332
00:14:34,000 --> 00:14:35,000
tratar con persoas

333
00:14:35,000 --> 00:14:36,000
con estas enfermedades

334
00:14:36,000 --> 00:14:37,000
e

335
00:14:37,000 --> 00:14:38,000
intentar

336
00:14:38,000 --> 00:14:39,000
facer súa amiga

337
00:14:39,000 --> 00:14:40,000
máis amiga.

338
00:14:40,000 --> 00:14:41,000
Tambén me parece

339
00:14:41,000 --> 00:14:42,000
moito importante

340
00:14:42,000 --> 00:14:43,000
o papel que

341
00:14:43,000 --> 00:14:44,000
ten tanto

342
00:14:44,000 --> 00:14:45,000
os familiares

343
00:14:45,000 --> 00:14:46,000
como os sanitarios

344
00:14:46,000 --> 00:14:47,000
ya que

345
00:14:47,000 --> 00:14:48,000
ningún familiar

346
00:14:48,000 --> 00:14:49,000
está preparado

347
00:14:49,000 --> 00:14:50,000
para

348
00:14:50,000 --> 00:14:51,000
vivir con algo así

349
00:14:51,000 --> 00:14:52,000
que na día de hoy

350
00:14:52,000 --> 00:14:53,000
como non ten cura

351
00:14:53,000 --> 00:14:54,000
que

352
00:14:54,000 --> 00:14:55,000
tambén me parece

353
00:14:55,000 --> 00:14:56,000
imprescindible

354
00:14:56,000 --> 00:14:57,000
la comunicación

355
00:14:57,000 --> 00:14:58,000
entre

356
00:14:58,000 --> 00:14:59,000
el tipo sanitario

357
00:14:59,000 --> 00:15:00,000
e os familiares

358
00:15:00,000 --> 00:15:01,000
ya que

359
00:15:01,000 --> 00:15:02,000
así

360
00:15:02,000 --> 00:15:03,000
si os familiares

361
00:15:03,000 --> 00:15:04,000
poden contribuir en algo

362
00:15:04,000 --> 00:15:05,000
van a hacer

363
00:15:05,000 --> 00:15:06,000
o trabajo

364
00:15:06,000 --> 00:15:07,000
de sanitario

365
00:15:07,000 --> 00:15:08,000
máis fácil

366
00:15:08,000 --> 00:15:09,000
e a vida

367
00:15:09,000 --> 00:15:10,000
del hijo

368
00:15:10,000 --> 00:15:11,000
máis amiga.

369
00:15:11,000 --> 00:15:12,000
O seguimiento

370
00:15:12,000 --> 00:15:13,000
de la enfermedad

371
00:15:13,000 --> 00:15:14,000
e o tratamiento

372
00:15:14,000 --> 00:15:15,000
son todas as conclusiones

373
00:15:15,000 --> 00:15:16,000
que he sacado

374
00:15:16,000 --> 00:15:17,000
ya que

375
00:15:17,000 --> 00:15:18,000
hai que

376
00:15:18,000 --> 00:15:19,000
evaluar

377
00:15:19,000 --> 00:15:20,000
se está tenindo

378
00:15:20,000 --> 00:15:21,000
unha mejora

379
00:15:21,000 --> 00:15:22,000
ou non

380
00:15:22,000 --> 00:15:23,000
que

381
00:15:23,000 --> 00:15:24,000
hacer un tratamiento

382
00:15:24,000 --> 00:15:25,000
ou outro

383
00:15:25,000 --> 00:15:26,000
ou intentar

384
00:15:26,000 --> 00:15:27,000
outras posibles

385
00:15:27,000 --> 00:15:28,000
soluciones.

386
00:15:28,000 --> 00:15:29,000
E por último

387
00:15:29,000 --> 00:15:30,000
la investigación

388
00:15:30,000 --> 00:15:31,000
me parece

389
00:15:31,000 --> 00:15:32,000
moito importante

390
00:15:32,000 --> 00:15:33,000
la investigación

391
00:15:33,000 --> 00:15:34,000
sobre todo

392
00:15:34,000 --> 00:15:35,000
en enfermedades

393
00:15:35,000 --> 00:15:36,000
claras

394
00:15:36,000 --> 00:15:37,000
enfermedades

395
00:15:37,000 --> 00:15:38,000
que non ten cura

396
00:15:38,000 --> 00:15:39,000
ya que

397
00:15:39,000 --> 00:15:40,000
pode haber unha posibilidad

398
00:15:40,000 --> 00:15:41,000
de que

399
00:15:41,000 --> 00:15:42,000
se poda llegar

400
00:15:42,000 --> 00:15:43,000
a desarrollar

401
00:15:43,000 --> 00:15:44,000
unha cura

402
00:15:44,000 --> 00:15:45,000
e se non existir

403
00:15:45,000 --> 00:15:46,000
a investigación

404
00:15:46,000 --> 00:15:47,000
non podíamos

405
00:15:47,000 --> 00:15:48,000
llegar a la verdad.

406
00:15:48,000 --> 00:15:49,000
E xa está.

407
00:15:49,000 --> 00:15:50,000
Estarán

408
00:15:50,000 --> 00:15:51,000
mirando.

409
00:16:22,000 --> 00:16:23,000
Están mirando

410
00:16:23,000 --> 00:16:24,000
durante este año

411
00:16:24,000 --> 00:16:25,000
e medio

412
00:16:25,000 --> 00:16:26,000
en que yo

413
00:16:26,000 --> 00:16:27,000
he estado

414
00:16:27,000 --> 00:16:28,000
tutoritándote.

415
00:16:28,000 --> 00:16:29,000
Me parece

416
00:16:29,000 --> 00:16:30,000
que has hecho

417
00:16:30,000 --> 00:16:31,000
un trabajo

418
00:16:31,000 --> 00:16:32,000
estupendo

419
00:16:32,000 --> 00:16:33,000
que creo

420
00:16:33,000 --> 00:16:34,000
que te va a servir

421
00:16:34,000 --> 00:16:35,000
en tú

422
00:16:35,000 --> 00:16:36,000
futura carrera

423
00:16:36,000 --> 00:16:37,000
profesional

424
00:16:37,000 --> 00:16:38,000
e sobre todo

425
00:16:38,000 --> 00:16:39,000
me ha impactado

426
00:16:39,000 --> 00:16:40,000
ya te lo dije

427
00:16:40,000 --> 00:16:41,000
en el simulacro

428
00:16:41,000 --> 00:16:42,000
e te lo repito

429
00:16:42,000 --> 00:16:43,000
ahora

430
00:16:43,000 --> 00:16:44,000
tú facilidad

431
00:16:44,000 --> 00:16:45,000
de palabra

432
00:16:45,000 --> 00:16:46,000
e lo bien

433
00:16:46,000 --> 00:16:47,000
que en mí opinión

434
00:16:47,000 --> 00:16:48,000
has comunicado

435
00:16:48,000 --> 00:16:49,000
tú trabajo.

436
00:16:49,000 --> 00:16:50,000
E sólo tengo una pregunta

437
00:16:50,000 --> 00:16:51,000
si se me permite,

438
00:16:51,000 --> 00:16:52,000
porque al final

439
00:16:52,000 --> 00:16:53,000
también se me ha ocurrido

440
00:16:53,000 --> 00:16:54,000
que es

441
00:16:54,000 --> 00:16:55,000
porqué elegiste este tema

442
00:16:55,000 --> 00:16:56,000
cuál es tú motivación.

443
00:16:56,000 --> 00:16:57,000
Pues

444
00:16:57,000 --> 00:16:58,000
fue el año pasado

445
00:16:58,000 --> 00:16:59,000
estábamos

446
00:16:59,000 --> 00:17:00,000
en una clase de biología

447
00:17:00,000 --> 00:17:01,000
con Belén

448
00:17:01,000 --> 00:17:02,000
Sánchez de Lima

449
00:17:02,000 --> 00:17:03,000
tu profesora

450
00:17:03,000 --> 00:17:04,000
y nos puso

451
00:17:04,000 --> 00:17:05,000
el documental

452
00:17:05,000 --> 00:17:06,000
que es el inicio

453
00:17:06,000 --> 00:17:07,000
de la cura

454
00:17:07,000 --> 00:17:08,000
y pues

455
00:17:08,000 --> 00:17:09,000
me pareció

456
00:17:09,000 --> 00:17:10,000
súperinteresante

457
00:17:10,000 --> 00:17:11,000
porque nunca había

458
00:17:11,000 --> 00:17:12,000
escuchado

459
00:17:12,000 --> 00:17:13,000
hablar de esta enfermedad

460
00:17:13,000 --> 00:17:14,000
y

461
00:17:14,000 --> 00:17:15,000
decidí

462
00:17:15,000 --> 00:17:16,000
pues investigarlo un poco

463
00:17:16,000 --> 00:17:17,000
saber

464
00:17:17,000 --> 00:17:18,000
de que se trataba

465
00:17:18,000 --> 00:17:19,000
y relacionarlo

466
00:17:19,000 --> 00:17:20,000
con el tema

467
00:17:20,000 --> 00:17:21,000
y con el tema

468
00:17:21,000 --> 00:17:22,000
de la biología

469
00:17:22,000 --> 00:17:23,000
que estaba contando.

470
00:17:23,000 --> 00:17:24,000
Y por último

471
00:17:24,000 --> 00:17:25,000
con respecto

472
00:17:25,000 --> 00:17:26,000
a lo último

473
00:17:26,000 --> 00:17:27,000
que has hablado

474
00:17:27,000 --> 00:17:28,000
acerca de la investigación

475
00:17:28,000 --> 00:17:29,000
sobre enfermedades raras

476
00:17:29,000 --> 00:17:30,000
ahí tienes

477
00:17:30,000 --> 00:17:31,000
un buen trabajo

478
00:17:31,000 --> 00:17:32,000
de investigación

479
00:17:32,000 --> 00:17:33,000
en

480
00:17:33,000 --> 00:17:34,000
no sé

481
00:17:34,000 --> 00:17:35,000
creo que sé

482
00:17:35,000 --> 00:17:36,000
lo que vas a estudiar

483
00:17:36,000 --> 00:17:37,000
en un futuro

484
00:17:37,000 --> 00:17:38,000
pero a lo mejor

485
00:17:38,000 --> 00:17:39,000
ese campo de investigación

486
00:17:39,000 --> 00:17:40,000
te atrae también.

487
00:17:40,000 --> 00:17:41,000
Muchas gracias Carlota.

488
00:17:41,000 --> 00:17:42,000
Pues

489
00:17:42,000 --> 00:17:43,000
seguidamente

490
00:17:43,000 --> 00:17:44,000
procedemos

491
00:17:44,000 --> 00:17:45,000
al turno

492
00:17:45,000 --> 00:17:46,000
del tribunal

493
00:17:46,000 --> 00:17:47,000
con sus preguntas

494
00:17:47,000 --> 00:17:48,000
que

495
00:17:48,000 --> 00:17:49,000
aportaciones

496
00:17:49,000 --> 00:17:50,000
al trabajo

497
00:17:50,000 --> 00:17:51,000
que

498
00:17:51,000 --> 00:17:52,000
ya

499
00:17:52,000 --> 00:17:53,000
han hecho.

500
00:17:53,000 --> 00:17:54,000
Hola,

501
00:17:54,000 --> 00:17:55,000
buenas tardes,

502
00:17:55,000 --> 00:17:56,000
Carlota.

503
00:17:56,000 --> 00:17:57,000
Hola.

504
00:17:57,000 --> 00:17:58,000
Mira,

505
00:17:58,000 --> 00:17:59,000
en el inicio del trabajo

506
00:17:59,000 --> 00:18:00,000
pues me estaba acordando

507
00:18:00,000 --> 00:18:01,000
de cuando vino

508
00:18:01,000 --> 00:18:02,000
San Juan Polla

509
00:18:02,000 --> 00:18:03,000
en verano

510
00:18:03,000 --> 00:18:04,000
haciendo

511
00:18:04,000 --> 00:18:05,000
batería de grino

512
00:18:05,000 --> 00:18:06,000
o

513
00:18:06,000 --> 00:18:07,000
cuando cambio

514
00:18:07,000 --> 00:18:08,000
zapatillas

515
00:18:08,000 --> 00:18:09,000
o cuando

516
00:18:09,000 --> 00:18:10,000
me quemo un poco

517
00:18:10,000 --> 00:18:11,000
la piel

518
00:18:11,000 --> 00:18:12,000
y eso te deja

519
00:18:12,000 --> 00:18:13,000
incapacitado

520
00:18:13,000 --> 00:18:14,000
de hacer

521
00:18:14,000 --> 00:18:15,000
las medidas

522
00:18:15,000 --> 00:18:16,000
y te dicen

523
00:18:16,000 --> 00:18:17,000
bueno,

524
00:18:17,000 --> 00:18:18,000
no,

525
00:18:18,000 --> 00:18:19,000
no,

526
00:18:19,000 --> 00:18:20,000
no,

527
00:18:20,000 --> 00:18:21,000
no.

528
00:18:21,000 --> 00:18:22,000
Estaba pensando

529
00:18:22,000 --> 00:18:23,000
que va a haber

530
00:18:23,000 --> 00:18:24,000
la gente

531
00:18:24,000 --> 00:18:25,000
que pasara

532
00:18:25,000 --> 00:18:26,000
esta enfermedad

533
00:18:26,000 --> 00:18:27,000
en todo lo que

534
00:18:27,000 --> 00:18:28,000
tiene que ser.

535
00:18:28,000 --> 00:18:29,000
Lo que me gustaría

536
00:18:29,000 --> 00:18:30,000
así comentarte

537
00:18:30,000 --> 00:18:31,000
uno de tus objetivos

538
00:18:31,000 --> 00:18:32,000
es

539
00:18:32,000 --> 00:18:33,000
como

540
00:18:33,000 --> 00:18:34,000
tu trabajo

541
00:18:34,000 --> 00:18:35,000
pueda ayudar

542
00:18:35,000 --> 00:18:36,000
a implementar

543
00:18:36,000 --> 00:18:37,000
y favorecer

544
00:18:37,000 --> 00:18:38,000
mejorar los objetivos

545
00:18:38,000 --> 00:18:39,000
de desarrollo

546
00:18:39,000 --> 00:18:40,000
del país

547
00:18:40,000 --> 00:18:41,000
y entonces

548
00:18:41,000 --> 00:18:42,000
como crees

549
00:18:42,000 --> 00:18:43,000
que

550
00:18:43,000 --> 00:18:44,000
el trabajo

551
00:18:44,000 --> 00:18:45,000
pueda mejorar

552
00:18:45,000 --> 00:18:46,000
el desarrollo

553
00:18:46,000 --> 00:18:47,000
del país

554
00:18:47,000 --> 00:18:48,000
y

555
00:18:48,000 --> 00:18:49,000
como un conocimiento

556
00:18:49,000 --> 00:18:50,000
de que

557
00:18:50,000 --> 00:18:51,000
hay gente que

558
00:18:51,000 --> 00:18:52,000
sufre

559
00:18:52,000 --> 00:18:53,000
algunas enfermedades

560
00:18:53,000 --> 00:18:54,000
y así

561
00:18:54,000 --> 00:18:55,000
de primera

562
00:18:55,000 --> 00:18:56,000
vez

563
00:18:56,000 --> 00:18:57,000
que le pasa

564
00:18:57,000 --> 00:18:58,000
pues

565
00:18:58,000 --> 00:18:59,000
intentar tener

566
00:18:59,000 --> 00:19:00,000
un conocimiento

567
00:19:00,000 --> 00:19:01,000
básico

568
00:19:01,000 --> 00:19:02,000
para saber

569
00:19:02,000 --> 00:19:03,000
que todas

570
00:19:03,000 --> 00:19:04,000
as enfermedades

571
00:19:04,000 --> 00:19:05,000
pueden ser visibles

572
00:19:05,000 --> 00:19:06,000
o no

573
00:19:06,000 --> 00:19:07,000
y que

574
00:19:07,000 --> 00:19:08,000
la gente

575
00:19:08,000 --> 00:19:09,000
sea consciente

576
00:19:09,000 --> 00:19:10,000
de

577
00:19:10,000 --> 00:19:11,000
la variabilidad

578
00:19:11,000 --> 00:19:12,000
de la enfermedad.

579
00:19:12,000 --> 00:19:13,000
Por otro lado

580
00:19:13,000 --> 00:19:14,000
como ves

581
00:19:14,000 --> 00:19:15,000
el futuro

582
00:19:15,000 --> 00:19:16,000
para el tratamiento

583
00:19:16,000 --> 00:19:17,000
para las enfermedades

584
00:19:17,000 --> 00:19:18,000
más eficazes

585
00:19:18,000 --> 00:19:19,000
o tratamiento

586
00:19:19,000 --> 00:19:20,000
para las enfermedades

587
00:19:20,000 --> 00:19:21,000
eficazes

588
00:19:21,000 --> 00:19:22,000
para las madres.

589
00:19:22,000 --> 00:19:23,000
Bueno

590
00:19:23,000 --> 00:19:24,000
el tratamiento

591
00:19:24,000 --> 00:19:25,000
para las madres

592
00:19:25,000 --> 00:19:26,000
es un tratamiento

593
00:19:26,000 --> 00:19:27,000
que

594
00:19:27,000 --> 00:19:28,000
yo creo que

595
00:19:28,000 --> 00:19:29,000
se podría llegar

596
00:19:29,000 --> 00:19:30,000
a encontrar

597
00:19:30,000 --> 00:19:31,000
y solucionar

598
00:19:31,000 --> 00:19:32,000
esos efectos

599
00:19:32,000 --> 00:19:33,000
secundarios

600
00:19:33,000 --> 00:19:34,000
y es un tratamiento

601
00:19:34,000 --> 00:19:35,000
que

602
00:19:35,000 --> 00:19:36,000
es bastante eficaz

603
00:19:36,000 --> 00:19:37,000
entonces

604
00:19:37,000 --> 00:19:38,000
creo que

605
00:19:38,000 --> 00:19:39,000
es una buena solución

606
00:19:39,000 --> 00:19:40,000
para

607
00:19:40,000 --> 00:19:41,000
esta enfermedad.

608
00:19:46,000 --> 00:19:49,000
Yo leyendo el trabajo

609
00:19:49,000 --> 00:19:50,000
Adrián me quedaba

610
00:19:50,000 --> 00:19:51,000
en alguna

611
00:19:51,000 --> 00:19:52,000
bueno me quedó una

612
00:19:52,000 --> 00:19:53,000
budilla

613
00:19:53,000 --> 00:19:54,000
que se las ha aclarado ahora

614
00:19:54,000 --> 00:19:56,000
con uno de los tipos

615
00:19:56,000 --> 00:19:57,000
de

616
00:19:57,000 --> 00:19:59,000
de esa enfermedad

617
00:19:59,000 --> 00:20:00,000
pues

618
00:20:00,000 --> 00:20:01,000
la nombra es como

619
00:20:01,000 --> 00:20:02,000
dominante

620
00:20:02,000 --> 00:20:03,000
reflexiva

621
00:20:03,000 --> 00:20:04,000
pero no me quedaba claro

622
00:20:04,000 --> 00:20:05,000
que te referías

623
00:20:05,000 --> 00:20:06,000
a la forma

624
00:20:06,000 --> 00:20:07,000
de transmisión

625
00:20:07,000 --> 00:20:08,000
pero efectivamente

626
00:20:08,000 --> 00:20:10,000
ahora aquí se las ha aclarado

627
00:20:10,000 --> 00:20:11,000
y

628
00:20:11,000 --> 00:20:12,000
luego otra

629
00:20:12,000 --> 00:20:13,000
me sugimas

630
00:20:13,000 --> 00:20:14,000
aquí

631
00:20:14,000 --> 00:20:15,000
que antes

632
00:20:15,000 --> 00:20:16,000
en cuanto

633
00:20:16,000 --> 00:20:17,000
al tratamiento

634
00:20:17,000 --> 00:20:18,000
de estos

635
00:20:20,000 --> 00:20:21,000
cuidados paliativos

636
00:20:23,000 --> 00:20:24,000
la asombración

637
00:20:24,000 --> 00:20:25,000
se hace

638
00:20:25,000 --> 00:20:26,000
es que

639
00:20:26,000 --> 00:20:27,000
se hace directamente

640
00:20:27,000 --> 00:20:28,000
externamente

641
00:20:28,000 --> 00:20:29,000
sabes

642
00:20:30,000 --> 00:20:31,000
me explico

643
00:20:31,000 --> 00:20:32,000
necesito explicarme

644
00:20:32,000 --> 00:20:33,000
que si un personal

645
00:20:33,000 --> 00:20:34,000
que a lo mejor

646
00:20:34,000 --> 00:20:35,000
tiene afectada

647
00:20:35,000 --> 00:20:36,000
la zona

648
00:20:36,000 --> 00:20:37,000
la zona linfal

649
00:20:37,000 --> 00:20:38,000
las áreas

650
00:20:38,000 --> 00:20:39,000
reflexivas

651
00:20:39,000 --> 00:20:40,000
como en algunas

652
00:20:40,000 --> 00:20:41,000
de

653
00:20:43,000 --> 00:20:44,000
de las medidas

654
00:20:44,000 --> 00:20:45,000
es

655
00:20:45,000 --> 00:20:46,000
ensalzamiento

656
00:20:46,000 --> 00:20:47,000
del esofago

657
00:20:47,000 --> 00:20:48,000
no?

658
00:20:48,000 --> 00:20:49,000
si

659
00:20:49,000 --> 00:20:50,000
has comentado

660
00:20:50,000 --> 00:20:51,000
a la hora de

661
00:20:51,000 --> 00:20:52,000
asombrarlos

662
00:20:52,000 --> 00:20:53,000
donde esta crecido

663
00:20:53,000 --> 00:20:54,000
no?

664
00:20:54,000 --> 00:20:55,000
o se hace directamente

665
00:20:55,000 --> 00:20:56,000
no, no, no

666
00:20:56,000 --> 00:20:57,000
me acuerdo

667
00:20:57,000 --> 00:20:58,000
se hace directamente

668
00:20:58,000 --> 00:20:59,000
sabes

669
00:20:59,000 --> 00:21:00,000
son como

670
00:21:00,000 --> 00:21:01,000
diferentes

671
00:21:01,000 --> 00:21:02,000
se hace una

672
00:21:02,000 --> 00:21:03,000
o se hace

673
00:21:03,000 --> 00:21:04,000
la otra

674
00:21:04,000 --> 00:21:05,000
con el mismo

675
00:21:06,000 --> 00:21:07,000
esperamos

676
00:21:08,000 --> 00:21:09,000
buenas tardes

677
00:21:09,000 --> 00:21:10,000
a la hora

678
00:21:10,000 --> 00:21:11,000
del trabajo

679
00:21:14,000 --> 00:21:15,000
dije un rato

680
00:21:15,000 --> 00:21:16,000
un poquito

681
00:21:16,000 --> 00:21:17,000
cuando no tuve

682
00:21:17,000 --> 00:21:18,000
información

683
00:21:18,000 --> 00:21:19,000
para presentarme

684
00:21:19,000 --> 00:21:20,000
en tu futuro

685
00:21:20,000 --> 00:21:21,000
profesional

686
00:21:21,000 --> 00:21:22,000
la verdad

687
00:21:22,000 --> 00:21:23,000
que he venido

688
00:21:23,000 --> 00:21:24,000
bien

689
00:21:24,000 --> 00:21:25,000
dirigidas

690
00:21:25,000 --> 00:21:26,000
a las áreas

691
00:21:26,000 --> 00:21:27,000
y dentro de tus

692
00:21:27,000 --> 00:21:28,000
conclusiones

693
00:21:28,000 --> 00:21:29,000
tenías una

694
00:21:29,000 --> 00:21:30,000
serie de apartados

695
00:21:30,000 --> 00:21:31,000
tu

696
00:21:31,000 --> 00:21:32,000
si tuvieras que

697
00:21:32,000 --> 00:21:33,000
decidir

698
00:21:33,000 --> 00:21:34,000
o lo que

699
00:21:34,000 --> 00:21:35,000
necesitarías más

700
00:21:35,000 --> 00:21:36,000
por

701
00:21:36,000 --> 00:21:37,000
ejemplo

702
00:21:37,000 --> 00:21:38,000
una línea

703
00:21:38,000 --> 00:21:39,000
de atención

704
00:21:39,000 --> 00:21:40,000
de tratamiento

705
00:21:40,000 --> 00:21:41,000
al paciente

706
00:21:41,000 --> 00:21:42,000
cual

707
00:21:42,000 --> 00:21:43,000
de las dos

708
00:21:43,000 --> 00:21:44,000
crees

709
00:21:44,000 --> 00:21:45,000
que es

710
00:21:45,000 --> 00:21:46,000
como

711
00:21:46,000 --> 00:21:47,000
o más importante

712
00:21:47,000 --> 00:21:48,000
ese tratamiento

713
00:21:48,000 --> 00:21:49,000
o seguimiento

714
00:21:49,000 --> 00:21:50,000
del paciente

715
00:21:50,000 --> 00:21:51,000
o directamente

716
00:21:51,000 --> 00:21:52,000
por cárter

717
00:21:52,000 --> 00:21:53,000
o en líneas

718
00:21:53,000 --> 00:21:54,000
de inoculación

719
00:21:54,000 --> 00:21:55,000
comentanos

720
00:21:55,000 --> 00:21:56,000
un poquito

721
00:21:56,000 --> 00:21:57,000
a ver

722
00:21:57,000 --> 00:21:58,000
yo

723
00:21:58,000 --> 00:21:59,000
ehm

724
00:21:59,000 --> 00:22:00,000
a ser una enfermedad

725
00:22:00,000 --> 00:22:01,000
genética

726
00:22:01,000 --> 00:22:02,000
debería que

727
00:22:02,000 --> 00:22:03,000
hubiera

728
00:22:03,000 --> 00:22:04,000
inoculación

729
00:22:04,000 --> 00:22:05,000
y que me

730
00:22:05,000 --> 00:22:06,000
ayude

731
00:22:06,000 --> 00:22:07,000
que la atención

732
00:22:07,000 --> 00:22:08,000
clínica

733
00:22:08,000 --> 00:22:09,000
ahora mismo

734
00:22:09,000 --> 00:22:10,000
es

735
00:22:10,000 --> 00:22:11,000
yo lo considero

736
00:22:11,000 --> 00:22:12,000
más importante

737
00:22:12,000 --> 00:22:13,000
porque

738
00:22:13,000 --> 00:22:14,000
es

739
00:22:14,000 --> 00:22:15,000
pues

740
00:22:15,000 --> 00:22:16,000
si se te forman

741
00:22:16,000 --> 00:22:17,000
ampollas

742
00:22:17,000 --> 00:22:18,000
normalmente

743
00:22:18,000 --> 00:22:19,000
te duele

744
00:22:19,000 --> 00:22:20,000
y ese

745
00:22:20,000 --> 00:22:21,000
la gente

746
00:22:21,000 --> 00:22:22,000
que tiene

747
00:22:22,000 --> 00:22:23,000
ampollas

748
00:22:23,000 --> 00:22:24,000
por todo el cuerpo

749
00:22:24,000 --> 00:22:25,000
deben de

750
00:22:25,000 --> 00:22:26,000
sufrir bastante

751
00:22:26,000 --> 00:22:27,000
entonces

752
00:22:27,000 --> 00:22:28,000
considero

753
00:22:28,000 --> 00:22:29,000
que es más importante

754
00:22:29,000 --> 00:22:30,000
ahora

755
00:22:30,000 --> 00:22:31,000
pues intentar

756
00:22:31,000 --> 00:22:32,000
reducir

757
00:22:32,000 --> 00:22:33,000
esas ampollas

758
00:22:33,000 --> 00:22:34,000
con el tratamiento

759
00:22:34,000 --> 00:22:35,000
con mucho que

760
00:22:35,000 --> 00:22:36,000
que hayan

761
00:22:36,000 --> 00:22:37,000
curas

762
00:22:37,000 --> 00:22:38,000
amfolo

763
00:22:38,000 --> 00:22:39,000
natural

764
00:22:39,000 --> 00:22:40,000
eh

765
00:22:40,000 --> 00:22:41,000
el tratamiento

766
00:22:41,000 --> 00:22:42,000
todo el mundo

767
00:22:42,000 --> 00:22:43,000
entonces

768
00:22:43,000 --> 00:22:44,000
va a seguir habiendo

769
00:22:44,000 --> 00:22:45,000
gente con

770
00:22:45,000 --> 00:22:46,000
ampollas

771
00:22:46,000 --> 00:22:47,000
que

772
00:22:47,000 --> 00:22:48,000
que necesite

773
00:22:48,000 --> 00:22:49,000
un cuidado

774
00:22:49,000 --> 00:22:50,000
esa

775
00:22:50,000 --> 00:22:51,000
valoración

776
00:22:51,000 --> 00:22:52,000
de todas

777
00:22:52,000 --> 00:22:53,000
las opciones

778
00:22:53,000 --> 00:22:54,000
del papel

779
00:22:54,000 --> 00:22:55,000
del profesional

780
00:22:55,000 --> 00:22:56,000
del secretario

781
00:22:56,000 --> 00:22:57,000
e

782
00:22:57,000 --> 00:22:58,000
que papel

783
00:22:58,000 --> 00:22:59,000
también

784
00:22:59,000 --> 00:23:00,000
tiene

785
00:23:00,000 --> 00:23:01,000
que hacer

786
00:23:01,000 --> 00:23:02,000
de todas

787
00:23:02,000 --> 00:23:03,000
a

788
00:23:03,000 --> 00:23:04,000
con

789
00:23:04,000 --> 00:23:05,000
el

790
00:23:05,000 --> 00:23:06,000
paciente

791
00:23:06,000 --> 00:23:07,000
que

792
00:23:07,000 --> 00:23:08,000
se

793
00:23:08,000 --> 00:23:09,000
comunica

794
00:23:09,000 --> 00:23:10,000
con

795
00:23:10,000 --> 00:23:11,000
las familiares

796
00:23:11,000 --> 00:23:12,000
después

797
00:23:12,000 --> 00:23:13,000
da

798
00:23:13,000 --> 00:23:14,000
eh

799
00:23:14,000 --> 00:23:15,000
la evolución

800
00:23:15,000 --> 00:23:16,000
del paciente

801
00:23:16,000 --> 00:23:17,000
como ayudar

802
00:23:17,000 --> 00:23:18,000
como

803
00:23:18,000 --> 00:23:19,000
contribuir

804
00:23:19,000 --> 00:23:20,000
eh

805
00:23:20,000 --> 00:23:21,000
facilitar su

806
00:23:21,000 --> 00:23:22,000
trabajo

807
00:23:22,000 --> 00:23:23,000
y

808
00:23:23,000 --> 00:23:24,000
obviamente

809
00:23:24,000 --> 00:23:25,000
no cargarle

810
00:23:25,000 --> 00:23:26,000
todo a la

811
00:23:26,000 --> 00:23:27,000
familia

812
00:23:27,000 --> 00:23:28,000
pero

813
00:23:28,000 --> 00:23:29,000
también

814
00:23:29,000 --> 00:23:30,000
que

815
00:23:30,000 --> 00:23:31,000
que la

816
00:23:31,000 --> 00:23:32,000
familia

817
00:23:32,000 --> 00:23:33,000
e

818
00:23:33,000 --> 00:23:34,000
агerman

819
00:23:34,000 --> 00:23:35,000
coats

820
00:23:35,000 --> 00:23:36,000
que

821
00:23:36,000 --> 00:23:37,000
o

822
00:23:37,000 --> 00:23:38,000
empresario

823
00:23:38,000 --> 00:23:39,000
tem

824
00:23:39,000 --> 00:23:40,000
durante

825
00:23:40,000 --> 00:23:41,000
,

826
00:23:41,000 --> 00:23:42,000
o

827
00:23:42,000 --> 00:23:43,000
procedimiento

828
00:23:43,000 --> 00:23:44,000
para

829
00:23:44,000 --> 00:23:45,000
anticomen

830
00:23:45,000 --> 00:23:49,000
mar

831
00:23:49,000 --> 00:23:50,000
s

832
00:23:50,000 --> 00:23:51,000
traste

833
00:23:51,000 --> 00:23:52,000
dos

834
00:23:52,000 --> 00:23:53,000
2003

835
00:23:53,000 --> 00:23:54,000
presidente

836
00:23:54,000 --> 00:23:55,000
centro

837
00:23:55,000 --> 00:23:56,000
hablan

838
00:23:56,000 --> 00:23:57,000
de

839
00:23:57,000 --> 00:23:58,000
que

840
00:23:58,000 --> 00:23:59,000
sería

841
00:23:59,000 --> 00:24:00,000
a

842
00:24:01,000 --> 00:24:02,000
..

843
00:24:02,000 --> 00:24:07,000
Little

844
00:24:07,000 --> 00:24:09,000
Mried

845
00:24:09,000 --> 00:24:11,000
en

846
00:24:11,000 --> 00:24:12,000
mer

847
00:24:12,000 --> 00:24:13,000
reminding

848
00:24:13,000 --> 00:24:14,000
explained

849
00:24:14,000 --> 00:24:16,000
Marti

850
00:24:16,000 --> 00:24:18,000
bar

851
00:24:18,000 --> 00:24:19,000
a

852
00:24:19,000 --> 00:24:21,000
joy

853
00:24:21,000 --> 00:24:24,000
expresión

854
00:24:26,000 --> 00:24:28,000
The

855
00:24:29,000 --> 00:24:31,000
Corazón

856
00:24:31,000 --> 00:24:33,000
..

857
00:24:33,000 --> 00:24:35,000
..

858
00:24:35,000 --> 00:24:37,000
..

859
00:24:37,000 --> 00:24:39,000
..

860
00:24:39,000 --> 00:24:40,000
..

861
00:24:40,000 --> 00:24:44,000
..

862
00:24:44,000 --> 00:24:46,000
..

863
00:24:46,000 --> 00:24:48,000
..

864
00:24:48,000 --> 00:24:50,000
..

865
00:24:50,000 --> 00:24:52,000
..

866
00:24:52,000 --> 00:24:54,000
..

867
00:24:54,000 --> 00:24:57,000
..

868
00:24:57,000 --> 00:24:59,000
..

869
00:24:59,000 --> 00:25:01,000
..

870
00:25:01,000 --> 00:25:03,000
..

871
00:25:03,000 --> 00:25:05,000
..

872
00:25:05,000 --> 00:25:07,000
..